A film by Adam Isenberg, Noah Amir Arjomand, Senem Tüzen
2021, 74 minutes
No. 393

Years with ALS have left Kathryn paralyzed and needing 24-hour care. With her mind intact and having opted for mechanical breathing, she could live like this indefinitely. But the situation has embittered and alienated her husband Said, and proved too much for many nurses and aides.

Her grown son Noah, who lives with Kathryn and Said in their New York City apartment, struggles to balance his academic obligations with those he feels to his mother. The disease has also been a destructive force complicating relations between everyone in her family. Kathryn often falls into despair, but she has been holding on to see her daughter’s wedding day.

This project draws on 930 hours of footage – all filmed without any crew present from a fixed camera from Kathyn’s point of view. The result is a profoundly intimate, layered and wryly funny portrait of a family at its breaking point.

Official Selection, IDFA
Official Selection, Full Frame 
Official Selection, Sheffield Doc/Fest
Official Selection, Santa Barbara Interntational Film Fest